in Which our Heroine Airs
her Dirty Laundry .
On Thursday morning I had a seizure, a facial tick that went
down into the neck. Clearly my new
anti-epileptic is a massive FAIL. So now
I must set my medicinal pal free where it can fly in the wind, (much like
dirtly laundry hung out to dry). Mine
erstwhile medicinal friend was also messing with my ever-erratic emotions way too
much—now that’s some grimy laundry for you, kind reader. Goodbye lamotrigine, and good riddance.
Enter oxy… something.
Ah, here it is: oxcarbazepine. (Who
names this stuff? It’s ridiculous). Another anti-eppiletetic, eteleppic,
epliteptic, epileleptic. Try saying it
three times fast. Ready, set GO!
So far I am really, incredibly, unabashedly, furiously dizzy and off balance. I am an adept
when it comes to walking into furniture.
Thus far my wonky combination of lamotrigine and oxy-something seem to
be a 24/7 thing rather than the previous 3-4 hour torture that has been my life every
day from 11 to 3 pm. I hope that I will
feel better when current archenemy No. 1 is purged from my system. I will know in four months time. If that doesn’t work then I will begin, or
possibly go back, to a different medicine. Or perhaps a combination?
Up and Down, Up and Down. I have
always loved roller coasters.
It’s rough, and I will tell you truthfully that this has
been an eventful, frenzied, confused, out of the ordinary, awful week for these
and other reasons I cannot articulate at this time. But I will survive, prevail, triumph over, keep
my chin up, fight the good fight, and continue on. Think of how much I’ve already been
through. Nothing can stop me now. Except that I have to wait another six months to drive legally. Nevertheless, I continue on with optimism, though it be at a slower pace. Kind of like fresh, white, clean laundry blowing gently
in the breeze in a quaint mountain valley.
Tara, my heart and prayers are with you. I cannot even imagine how it must be, but your wit, optimism and courage are so inspiring! You are amazing!
ReplyDeleteI just ran across your article on the keppra. I have had the exact same lovely events with keppra. I had the brain surgery in 2005. I have never been myself since they started me on that lovely drug. Memory is low. Depression is high. I hope you're doing well
ReplyDelete